January 23

31st January 2023. 660 days after the first seizure event.

Let me begin with a very happy comment.

Ooerr. At T + 660 days (t=onset) I have hit the magic number of 0, null points, zip – all types of seizure for > 36 days.

  • last physical seizure > 336 days ago
  • last drop attack > 36 days ago
  • last absence seizure > 42 days ago
  • last tonic seizure > 85 days ago

Truly special thanks beyond words to all of my amazing family who have been so, so supportive and understanding throughout this learning curve. At T0, no one really understood what was happening, how long the road was or even where it went. Tis early days at 0, however the longer at 0, the stronger the imprinting becomes of new neural pathways replacing the ‘dodgy ones’ which would have led to seizure activity. I’ve put a bit of extra effort into my intervention routines over the past few months to reduce the activity which had plateaued at 0.06. Cautiously optimistic – nature is a fickle creature. Quietly though, very pleased indeed with this.

638 total seizures over 660 days and a current probability rate (PR) which has reduced from 6.88 per day on day one to now be at 0 with a two month future forecast based upon historical data showing the following for the next two months. Let me see if the model works in two months time to see the comparison of forecast to actual.

This PR is the ‘likelihood’ of me having a seizure or sequence of seizures in any one given day.

Seizure projection based upon prior 22 months data

In response to a comment.

Thank you. It can be done.

Despite what others say or believe.

The evidence is truthful and objective. As you say family support and much humour are prerequisites as well as the determination.

From the Book of Meditations written by Marcus Aurelius.

Now the roller does not have the gift of following its own movement wherever it will, nor does water or fire, or anything else subject to a nature of life without reason: there are many barriers or impediments in their way. But mind and reason have the power, by their nature and at their will, to move through every obstacle.

Marcus Aurelius