Monthly Updates

July 31st 2023. 841 days after the first seizure event.

My good progress continues.

At T + 841 days (t=onset) I remain at the magic number of 0, null points, zip – all types of seizure for > 216 days.

  • last physical seizure > 516 days ago
  • last drop attack > 216 days ago
  • last absence seizure > 222 days ago
  • last tonic seizure > 265 days ago

There is always sunshine after the rain.

Cautiously optimistic – nature is a fickle creature. Quietly though, very pleased indeed with this.

I have updated the Seizure Analysis page with the more data but for me these are the key metrics I am using now. This includes a specific example of how REM Sleep can be shown to be a prodrome for my types of absence seizures.

You can see the full data on the Seizure Analysis page. This has data up to and including 31st July 2023.

Thank you for reading my story. I find my functional seizures fascinating and for me they continue to be a great science project for me to get my teeth into. As ever I remain very positive.

To experience is to live, and that is our purpose, whilst we await for our telomeres to finally unravel, and we depart this oasis which sits in the vastness of the universe.