September 30th 2023. 912 days after the first seizure event.
On 3rd September, I experienced a cluster of two clonic seizures. I had a short interval between them.
I have noticed in recent weeks the feeling of general tiredness. I have spent many an afternoon having a nap for an hour. At weekends I am spending 3 to 4 hours a day resting.
Very tired at the moment with a holiday booked towards the end of the month.
On 26th September I wrote:
Getting the ‘ACME seizure gadget’ ready again for Wednesday am. Not dissimilar to a migratory creature travelling 3200 km in a South easterly east direction for a more favourable climate arriving home from home.
Going for some relaxation time jn Argaka, Cyprus. The tiredness can be attributed to the elevated seizure activity this month.
You can see the full data on the Seizure Analysis page. This has data up to and including 30th September 2023.
Thank you for reading my story. I find my functional seizures fascinating and for me they continue to be a great science project for me to get my teeth into. As ever I remain very positive.
To experience is to live, and that is our purpose, whilst we await for our telomeres to finally unravel, and we depart this oasis which sits in the vastness of the universe.